A local group of the National Rheumatoid Arthritis Society
15th May 2014 -
For this meeting, we held an open forum to discuss and share our lives of living with RA. Janice Booth, Rheumatology Nurse Practitioner, was on hand to answer our many questions. A general discussion took place as a result of the many questions raised. Our thanks to Janice for answering all the issues raised and to all those attending for making the evening helpful and informative. I’m sure we all learned something new that will help us to live with RA. Some of the questions raised were…
How useful is ultrasound when used for investigating joint damage? I hear other hospitals use it as a regular tool, is it used in Blackpool?
How close are we to finding a solution to the problem of treating RA with the correct medication at the outset? I've had so much stuff and many years down the line I'm still suffering.
I suffer terribly with problems in my feet yet this is not taken account of in my DAS, making my score unreliable. Why is this?
Can the medication we take for RA be the cause of heart problems?
Can RA lead to osteoporosis?
I've heard that having one auto-
I'm taking five different medications for my RA. How do I know which are actually working? Seems less than wise to be taking tablets unnecessarily!
Can I arrange to see a physiotherapist / occupational therapist?
I have several health problems requiring consultations with three separate consultants each specialising in
their own area. At no time do they seem to come together which is worrying as how can I be sure I'm receiving the most appropriate treatment for my conditions?
To find the answers to these and the many other questions about RA, then come along to our meetings on the 3rd Thursday of alternate months. See our calendar of events for our next meeting, You will be welcomed
20th March 2014 -
Blackpool, Fylde & Wyre NHS Hospitals Trust.
16th January 2014 -
Blackpool, Fylde & Wyre NHS Hospitals Trust.
Jenny explained the effect of RA on the joints and the importance in maintaining joint movement through exercise and taking rest. A survey of those attending highlighted the wide range of activities that provide ‘non-
Jenny then went on to answer a number of related questions from those attending.
We would like to thank Jenny for taking time to speak with us and for her continued support for BADRAG since its formation in 2010.
21st November 2013 -
19th Sept 2013 -
A different type of talk today for BADRAG. Prof. Goodacre came to explain and discuss with us about research and clinical trials. Explaining that one of his many jobs (see his profile here) was Clinical Director of Cumbria and Lancashire Comprehensive Local Research Network (CLCLRN), one of 25 area’s within the National Institute for Health Research (NIHR). Explaining what is clinical research, the Professor led a discussion about our involvement and reasons for being involved. He went on to make us aware of the ‘ It’s OK to Ask’ about clinical research campaign. If we have a medical condition and are undergoing treatment, we were urged to ask our GP, nurse or consultant about clinical research and if it would be right for us. Clinical research is the way in which we improve treatments in the NHS.
Thanks were given to Professor Goodacre for his thought provoking visit.
For further information on the ‘OK to Ask’ campaign, NIHR, the CLCLRN then visit their website at www.crncc.nihr.ac.uk
18th July 2013 -
Another interesting and informative presentation from Dr Rao. Explaining what is RA, how it presents itself and what causes it, Dr Rao gave us all lots of facts about RA. How 0.8% of the population are affected and that 3 times more women have RA than men. The treatment methods for RA were then explained to us -
Current concepts and future plans for the management of RA were also mentioned. Dr Rao closed her presentation by sharing with the group the achievements of people with RA. The list included… well have a look at the presentation by clicking here. Following a Q&A session, BADRAG group coordinator Lyn Wilson thanked Dr Rao for coming along and for her presentation.
16th May 2013 -
Val had travelled from NRAS HQ (Maidenhead) to present to BADRAG members an overview of the work of NRAS. She explained that NRAS role is to make ‘a better life for those living with RA’, and gave an outline of NRAS goals for the next few years. Two forthcoming events, driven by NRAS, were then described. RA Awareness Week (24-
Lyn then thanked Val for visiting the group and for her presentation. A copy of Val’s presentation can be seen by clicking here.
21st March 2013 -